Rewrite The Scars

My friend is a girl you might know. 

At one time in her life she was a world renowned wedding dress designer who was featured on Say Yes To The Dress.

I was invited to provide a cake for a "Meet the Designer Trunk Show" at a bridal salon in Delaware. 

That's how we met. 

She looked at the cake I'd created for the event and said she felt like she could create a dress based on the cake. 

I wanted to jump out of my skin with excitement. 

I was so nervous and she was so gracious.  

I was immediately taken by her genuine authenticity. 

Seriously, she may be one of the nicest people on the face of the earth. 

After that event we stayed in touch and I did another event with her the following year. 

A little back story here: Nearly 15 years ago this amazing woman signed a contract with a wedding dress design house that gave her her own named dress line! 

It was a dream come true for any designer. 

Because she is a glass half-full type of person, was so excited and flattered that it never crossed her mind that someone would do something that would cause her harm and did not have a lawyer review the contract before she signing.

When she asked questions, they said she could renegotiate any potential issues. 

Well, that turned out to not be true. 

Not only did they not allow her to renegotiate the contract but they stopped paying her, took her social media accounts, any sketches of any type of dresses and they took her name. 

Yes, you read that correctly, she is no longer allowed to use her birth name. 

Evidently it was written into the contract that she signed. Yes, she signed it but, in my opinion, there is a special place in hell for businesses and owners who operate so unethically. They knew what they were doing when they put that in there in the first place! 

Anyway, fast forward a few years, many thousands of dollars and many court battles later...She still cannot use her name, she is barred from working in the wedding industry for five years because of the non-compete clause but she did get her pictures back from her social media accounts. 

And... she has a new name. 

She is Cheval. 

She is powerful, strong, kind, loving, sweet, wonderful, smart, funny and a genuinely good person. 

She is also now a shoe designer! 

I know, right?! 

Her shoes are amazing! Not only are they beautiful but I wore a pair, right out of the box, for her launch party and they were stupid comfortable! 

Once I decided to forego reconstruction after my  double mastectomy I made the decision to get a tattoo. 

She is Cheval

I reached out to Cheval to see if she'd be interested in designing it for me. The only thing I told her was that  it had to have a pink ribbon in it and I wanted florals.

She did the rest. 

The design is amazing! It needed a very minor amount of tweaking to make it perfect. I was so excited when I got the first drawing that booked the appointment months ago. 

Today I had my first sitting. 

Some parts hurt like a mother f$cker and some I didn't even feel. 

When they cut off the boobs I lost a lot of sensation in those areas of my chest but the center was crazy painful. 

Getting the color done will hurt too but..

It's already worth it. 

Once my tattoo artist, Aly was finished and I looked in the mirror I almost cried. 

For almost a year and a half all I've seen was scars. 

Today I saw beauty. 

A beautiful design created by one of the most beautiful and resilient poeple I have met in my life. 

I am blessed to call her friend and honored to wear her art. 

                                                You can follow She is Cheval on Instagram 

Patience...

...is a virtue I lack. 

Everything involved with this process involves waiting and it is beyond stressful. 

Have a test? 

Wait for the result. 

Have a question? 

Wait for the reply. 

Follow up with the doctor? 

Wait for that appointment. 

Want to schedule surgery? 

You'll have to wait a few weeks to get on the roster. 

AAAAAAAAAAAAH! 

I do have a surgery date though. 

May 17, 2021 will be the day I go in for the double mastectomy.

Yes, I have to wait another 18 days for that too! 

But...

No more bras!!!! 

I decided that I am definitely not interested in having the reconstruction done as the statistics for additional surgeries/failure are really high. Instead, I have a beloved friend who has agreed to design a chest tattoo for me. 

I am so excited and can't wait to see what she creates!!! 

In the meantime, we are still waiting for the Her2 pathology. 

What is HER2?

The human epidermal growth factor receptor 2 (HER2) gene is responsible for producing HER2 proteins. HER2 proteins are present on the surface of some breast cancer cells. When they’re activated, they signal breast cancer cells to divide and multiply. 

Normally, HER2 proteins regulate and control the growth of breast cells. But when the HER2 gene is mutated, which is the case in about 1 in every 5 cases of breast cancer, it makes too many HER2 proteins. This results in breast cells growing and dividing out of control.

So you can see why this is important pathology! 

I had a bone scan that showed a weird thing with my spine that the radiologist says is most likely degeneration but it also is in the area where I had a spinal fusion in 1990. I will have to have a CT scan to double check and rule out anything else. 

Next week I meet with a genetic counselor but I'm not entirely sure why and I will also see my surgeon again to go over the tests and discuss surgery. Hopefully, we'll have the Her2 back. 

With the surgery date set, I have begun to prep. 

My employees (greatest people on the face of the earth BTW) are  ready to jump in and do whatever is necessary. My business partner has been training extra people to cover shifts in our store and I have added a ton of people to the pick-up list at the kids’ school. 

After surgery it will be a minimum of two weeks before I can really do anything so another friend and pink ribbon sister has set up a Take Them A Meal link for people to help out. This is the link if you would like to sign up. https://takethemameal.com/FYPS6898  

Countless numbers of people have offered assistance for things from folding our laundry (you are saints) to transporting the boys to their activities. Even my hubby’s employer told him to take whatever time he needs. 

No matter what, this is a crappy situation but the outpouring of love and support has blessed us with peace of mind and we couldn’t ask for more!  

Until next time ladies...