Friday, January 27, 2023

Adrenaline and an Ambulance Ride

I have never been one to pass up a challenge. 

Honestly, I am a bit of an adrenaline junky. 

Not in a freeride mountain bike sort of way but I'm not afraid of heights and I enjoy a good adrenaline rush. 

I was a competitive diver in high school and college and I have taken trapeze lessons, gone ziplining, jumped out of a plane and now have gone indoor skydiving. 

It was the shizz! 

Seriously! If you get the chance...GO! 

Can you get hurt? Sure but you can get hurt crossing a street or driving to work. I'd rather my end come when I'm doing something that makes me smile. 

I bought a package for the family for Christmas. 

My concentration for this year was on group stuff that we could do together. We got new board games, thing called the Shock-tato and two flights per person at iFly. 

Shock-tato and the board games are fun but the winner, hands down, was iFly. 

Each person got one minute of flight time, twice. 

We were in a group of 12 and when the first person finished they moved to the end of the line etc until you got back to the first person. 

It's not a cheap thing to do but was definitely worth every second. 

60 seconds doesn't sound like much but it's longer than you think when you are holding the skydiving position. 

There were hand signal commands because you can't talk in a wind tunnel with speeds of 70 mph+

The hand signals are really important! 

Learning the signals and knowing what to do when instructor gives them to you is the key to a successful flight. 

Following directions in general can be key to success. 

Thinking out of the box is good but not in life or death situations. 

More important than the rush that comes from flying is the shared experience with my guys. Glenn and I are not just sideline parents. We like to be involved and do as much as we can with the boys. 

This is one of those times I was more than happy to not be sitting on the sidelines. 

Sharing our windtunnel experiences together was fantastic and truly everything I had hoped for when I bought the tickets. 

We bought the special package to go back and do it again and none of us can wait! 

The boys are 10 now and the amount of time that they want to spend with us old folks is getting shorter and shorter. I am making a conscious effort to extend that as much as possible by encouraging family time. 

This was the reason for the theme for this past Christmas. 

We live in a society that puts stuff ahead of quality time and that's just not us. 

From cars to couches we buy as much used stuff as we can. Not only does it save a ton of money, but most of the stuff that others discard has plenty of life left in it and allows us to spend money on other things. 

Like indoor skydiving! 

My hope is that when the boys are grown and raising families of their own their concentration will be on creating their own memories not on the stuff that was under the tree on Christmas. 

While we are working on spending time together we are also not helicopter parents. It's never been our
thing to hover over our kids. Both hubby and I believe in the benefit of making mistakes and learning lessons. 

We also believe in independence. 

This paid off in droves when I was battling cancer. 

To this day the boys can get themselves up and ready for school. If I give them a list of chores they are pretty good about handling them. And, they don't look to us to be entertained. 

Maybe its a twin-mom thing. I never had the ability to just dote on one kid at a time. 

They did almost everythng at the same time: meals, naps, baths, etc. 

And, because I work with my hands from home, often just had each other to be entertained. 

This paid off again two weeks ago. 

Saturday morning at about 5:45 hubby was up making coffee when he heard a thump come from upstairs. 

He ran up to see what was going on and discovered me in a full seizure on the floor on my side of the bed. 

He called 911. 

I can't imagine how horrifying it must have been for him! 

The first thing I remember is being loaded into the back of the ambulance. 

After filling the boys in on what was going on, they went back to bed and hubby met the ambulance at the hospital. 

The good news is that all of the tests for serious things like a stroke or a brain tumor came back negative. 

The bad news is that they have no idea what caused it. 

Winter is a tough time for those of us who battle depression. I take a daily antidepressant but in the winter I take and extra one (thanks to daylight savings time) called Wellbutrin. 

They told me in the ER that Wellbutrin can cause seizures. 

I did a little reasearch and discovered that 4 out of every 1,000 people taking Wellbutrin will suffer seizures. I stopped taking it immediately. 

But, based on a study published in the the American Academy of Neurology patients who had Covid-19 were 55% more likely to develop epilepsy or seizures in the six months following Covid infection vs patients who had influenza. 


Well, I had Covid the week before Thanksgiving 2022. That was only two months ago. 

I was told to make a follow up appointment with a neurologist...I did. The earliest I can get in is March. 

Hurry up and wait. 

In the meantime I will follow up with my general practitioner and pray that this was one and done...forever. 

Wednesday, January 4, 2023

Just Be Quiet!

I recently heard a story about a woman who told a co-worker that she'd been diagnosed with breast cancer. The co-worker responded with, "Wow my friend's mom died from breast cancer."

OMG!!!! 

Really?! 

There are so many things that you can say to a woman when she tells you that she's been diagnosed with breast cancer. 

Immediately responding with a death comment is NOT one of them. 

Other things that one should refrain from saying are, "They're just boobs. Since your kids are grown you don't even need them anymore. You'll get a free boob job. Now you can have the boobs you've always wanted. You should...whatever" Save the advice for when you are asked. 

Times like that silence truly is a virtue. 

What should you say?

How about: 

  • I'm so sorry.
  • What is your treatment plan?
  • I'd like to arrange a meal train after your surgery
  • I can help you with childcare
  • Are you all set for transportation?
  • If you ever just want to vent I'm here for you. 
  • I have a friend who just went through this can I connect you? 
Although breast cancer patients may have identical diagnoses, patients react differently to the treatments and one size does not fit all. Many of the emotions a patient experiences can be very similar but others can be polar opposites. Experiences may be similar but no two are identical. The most a patient can hope for is to find a kindred spirit who feels what they feel. 

Speaking to someone who has "been there, done that" can be helpful for a couple of reasons: 
  • Speaking to a survivor breeds hope
  • Only another patient can truly understand what the person is experiencing physically and mentally
  • Having walked the path before them can offer advice that comes from first-hand experience
  • Often a patient doesn't have to describe what they feel the other person knows and can often verbalize what the "newbie" has yet to flesh out. 
Have you ever met someone who went through a similar experience to whatever you were going through at the moment and they say something that describes the thoughts that have been swirling through your brain but haven't yet been able to verbalize? 

It feels like they could read your mind and put your thoughts into words. 

It's a miraculous moment. 

Connection at a time when life feels like its unraveling is vital because it's grounding. 

Being told that you have cancer is horrific. Because of my family history with it I was not shocked but that does not mean that it wasn't terrifying. Being able to speak to someone that has already walked the path is comforting. 

It's the reason that 12 Step programs like AA (Alcoholics Anonymous) work so well. 

The flellowship of AA is just as important as the actual steps. Being with others who know exactly what you are going through is life altering. Not having to constantly fish for words that descibe feelings takes a weight of one's shoulders and allows the person to "just be." 

I belong to a group on facebook for breast cancer patients. These women were lifesaving in the early days of my diagnosis and treatment. There is so much to learn and understand overnight. I didn't have to give background, I could just pop on, post a question or say how I was feeling and BAM immediately they would begin responding. They knew exactly how I felt.

To this day, I can't put into words the level of comfort that it would give me.

I didn't have to explain anything, listen to horrifying stories of dead loved ones or respond to insensitive comments. 

If you don't know what to say, then just say so! 

Don't try to come up with something cute or offer advice on traveling a path you have never walked. It just makes you look like a know it all and, frequently, stupid! 

Mark Twain put it best, "It is better to remain silent and be thought a fool than to talk and remove all doubt." 

When in doubt, say nothing.