More Research Is Needed

Did you know that a potential long-term side effect from Covid is Diabetes?

Yeah, neither did we. 

While I have bounced back and and almost 100% again, Glenn was not so lucky. 

We thought he was making progress and had begun to eat again but his thirst was off the charts, he was still losing weight at an alarming rate and his fatigue was terrible. 

He went to the doctor who sent him for a chest x-ray because she was concerned about covid pneumonia.

Turns out he does have a mild case of pneumonia, so mild in fact, that if that had been his only complaint the doctor would have given him steroids and sent him home. 

It was the additional symptons that had her concerned so she wanted Glenn to head to the ER. 

Before we could leave I had to organize after school care, transportation to gymnastics, pick ups and dinner. It was a crazy amount of phone calls and texts but thanks to my assistant Jace, the parents of their friend and our wonderful friend Cory, everything worked out well. 

We got to the ER at approximately 4:30. I wasn't allowed in and had to wait in the car. Fortunately, this is the same hospital where my surgery was so I am familiar with the layout and was able to find a lounge where I could hang out, plug in my Kindle and cell phone and wait until they took him back. 

Unfortunately, I didn't last that long. Glenn needed a charging cord for the phone and informed me at 8:30pm that it was going to be at least three more hours until they were going to give him a bed so I gave him my cord and headed home so that Cory could head out. 

Glenn wasn't given a bed until 11:30 last night! 

Turns out that the pneumonia was the least of his problems. 

His blood sugar was over 500! 

Blood sugar, or glucose, is the main sugar found in your blood. It comes from the food we eat and is the body's main source of energy. The blood carries the glucose to all the body's cells to use for energy. 

Normal blood sugar ranges from 70-100. 

What is Diabetes? The American Diabetes Association has a great article that explains it. 

So how does Covid cause diabetes? 

No one is 100% sure but it seems that they are getting closer to understanding what is happening. Recent research has discovered that the beta cells in the pancreas are particularly subject to attack by the Covid virus. Beta cells are responsible for the production of insulin and insulin is what is used to deliver glucose to the cells in the body. This article from abcNews does a nice job of explaining what happens, why diabetics are at higher risk and what happens to the pancreas to cause diabetes to develop in a patient. 

I learned today that viruses in general have long been suspected of causing or exacerbating diabetes. More research is needed but to have identified the attack on beta cells is huge and could lead to greater diabetes break throughs over time. 

Statistics are showing that the danger is worse for children under the age of 18 but, as we have learned, it can still happen to adults. Unfortunately, they don't have enough data to truly understand why some will get it and some won't. There is no way of knowing if the patient was predisposed to it or if they were prediabetic prior to contracting Covid. 

Again, more research is needed. 

Much like the symptons of Covid the side effects are numerous. As a result of Glenn's diagnosis we are now aware of the potential for diabetes but are also learning that other serious side effects include blood clots, strokes, heart issues and Guillain-Barre Syndrome which causes paralysis. 

Unfortunately, Covid is here to stay. I firmly believe that eventually everyone will get it. Some will suffer worse than others and some will just sail through. There is no way to predict how each person will be effected...yet. 

Hopefully, as time passes, the medicines will get better and less people will get it. 

In the meantime, keep an eye on your loved ones, especially the children. If they have had Covid and are suddenly thirsty, fatigued and losing weight they need to be tested for diabetes. 

I did my best to explain to the kids today what was going on. I think they understood. Lucky for us they have a friend who is a Type 1 diabetic so they understand that dad will need insulin and shots. They seemed relieved that he is feeling better already. 

He'll be in the hospital for a few days but his prognosis is good. 

If you are inclined, we'd appreciate if you could send a few prayers up.

Pacifically

As I mentioned in my last post, there was a "spot" on my spine that showed up on my bone scan. 

That set off a chain reaction that left me in bed all day on Saturday bawling my eyes out. 

It was bound to happen eventually and I did feel a little better afterwards. We really do need a good cry from time to time. 

A friend calls these Cancer Sucks days. 

So let me back track a bit here...

Got the bone scan results that said there was something there but felt that it was most likely degeneration. Then I had the breast MRI that showed the tumor being significantly larger than what they saw in the mammogram...I'll get to that shortly. 

My surgeon wanted to make sure that the spine thing wasn't a huge issue so she ordered an MRI. The insurance company declined to authorize it because I hadn't had an x-ray, because paying for an unnecessary x-ray makes sense, so I had an x-ray and that showed something there too. 

That was on Friday...then I waited again. 

The weight of what might be in my spine hit me on Saturday while I was out delivering cakes and I had a total meltdown. I got someone to cover my shift at the store, went home, crawled under the covers and stayed there crying and napping all day. 

Part of my pity party was because I hate pity parties!! The other was because I am competely powerless and felt like I was taking two steps back for every step forward. It's a roller coaster I wouldn't wish on anyone.

My prayers were frantic. I couldn't put a cohesive thought together and just kept saying, "God's got this." Honestly, I really do believe that but I got into my head and started the "what if I have bone cancer" game. Fortunately, the Lord knows my heart and even when I am depressed, angry or frustrated he really is holding me up. 

But, it doesn't mean I can't be pissed off or that I don't need a good cry! 

I managed to pull myself together in time to eat dinner then went back to bed. 

Monday rolled around and I met with the genetic counselor. It probably wasn't a waste of time, but it felt like it was. I had my mom's genetic report with me and after the counselor looked at it she said, "Your mom was negative for all seven of the genes that she was tested for. You most likely won't have the BRCA gene which is fantastic." I replied, "Well, considering that I have breast cancer it doesn't really matter now does it?" 😳

The appointment consisted of me telling the counselor my family history while she drew a flow chart. We have an $80 copay for specialists. So, I paid $80 for someone to write down my horrible family cancer history. I am a candidate for genetic testing but it's more money and well...it's more money. 

The worst part of the appointment was that no one bothered to tell me that I was going to be meeting with this counselor in an infusion center. The waiting room was filled with a plethora of other cancer patients in various stages of treatment. To get into the counselor's office I had to walk through the actual infusion area which I was definitely not ready for. I know, I know, I'll be there eventually and at that time I'll know I'm walking into an infusion center. It really was traumatic.  

That afternoon the radiologist's report came in confirming what the more advanced bone scan had already found. Although both radiologists felt it was degenerative, because of my breast cancer, they recommended an MRI with and without contrast. 

My nurse navigator got me right into Jennersville for an MRI on Tuesday afternoon. By this point I've had blood drawn, a nuclear injection for the bone scan and the injection for the contrast for the breast MRI all in my right arm. I had the nurse give me the injection for the contrast in my left arm and well, now I look like a junkie. 

Hot! 

Both the radiologist at Jennersville and the radiologist at Penn Medicine have read the MRI and confirmed that there is no cancer on my spine...it's arthritis. Yay for getting older. 

I met with my surgeon yesterday morning and surgery is confirmed for Monday, May 17. I won't know the time until the Friday before. 

She will be performing a double mastectomy with sentinel node biopsy. I have requested that she do an aesthetic flat closure that leaves no spare skin as I will not be having reconstruction. Surgery is expected to last approximately four hours depending on the sentinel node biopsies. If it comes back clear we are good to go. If not she'll have to take more. 

Now let's back up to the breast MRI...

The tumor was larger for a couple of reasons: 1. They can see it 3D in the breast MRI where the Mammogram is flat, because...that's how they make your boobs. 2. I have both invasive and non-invasive cancers in my right breast. Until they breach the duct walls and invade the breast tissue they are contained which means they are currently non-invasive. Non-invasive is considered Stage 0. 

All together the tumor is 6 cm but only 2 cm are invasive so I don't need chemo before surgery. If the invasive stuff was 4 cm or more, I'd do chemo first to shrink it and then have the surgery. 

In my last post I mentioned HER2. HER2-positive breast cancer is a breast cancer that tests positive for a protein called human epidermal growth factor receptor 2 (HER2). This protein promotes the growth of cancer cells. In about 1 of every 5 breast cancers, the cancer cells have extra copies of the gene that makes the HER2 protein.

Evidently, I'm the one out of five. 

Winner! 

Ugh! 

Now that we know I am HER2 positive my chemo plan will be a little more aggresive and I will be given Herceptin via infusion for a year. HER2 inhibitors work against HER2-positive breast cancers by blocking the ability of the cancer cells to receive chemical signals that tell the cells to grow.

Of course the actual chemo plan won't be confirmed until after surgery and the pathology comes back. 

In the meantime, I started taking Reishi mushrooms. A friend also gave me a book called Medicinal Mushrooms. It is an easy read and fascinating! Reishi mushrooms are really bitter but the good news is that I can put the tincture in my coffee and can't taste it! 

Clinical studies with Reishi have found that patients have a better response to chemo while using it and if stay with it my immune system will be stronger too. I bought dried ones and decocted them. In order to decoct them I had to boil them for an hour then strain off the water and squeeze out the mushroom. They never got soft but I did get lost of "juice" that I was able to use this week. I have run out of the juice so I'll be going to The Woodlands at Phillips Mushrooms Farms to buy some other mushrooms until the ones I ordered arrive. They sell the book there too if you are interested. 

And, if all this wasn't already enough to digest, our central AC decided to quit this week! I mean when you have a family medical deductible of $9,000 (thanks for that Obama) what's another $5,000 right? 

Yup! So we are weighing our options and will most likely replace both the AC and furnace. Both are more than 20 years old and it would be at least $1800 just for the freon because they use new stuff now. If we have to do one we might as well bite the proverbial bullet and do them both. But seriously...Now? 

Managing stress has been crazy hard this week. Thankfully God blessed me with two of the most amazing hysterical children in the world. They keep me on my toes and make me laugh. Today we were driving David to gymnastics and I challenged them to say Irish Wrist Watch five times fast. The result had me laughing so hard I had tears streaming down my cheeks. 

Daniel then said, "I want Kieran to try this." David asked, "Why pacifically Kieran?" Daniel yelled, "PACIFIC IS AN OCEAN."

I came really close to shooting coffee out my nose! 

BTW it was only last week that Daniel was also saying "pacifically." 

Thanks for the laughs guys...I really needed them this week!