Showing posts with label patience. Show all posts
Showing posts with label patience. Show all posts

Tuesday, May 11, 2021

Sucky Day

Today was an emotional roller coaster day and for no reason other than it just sucked. 

One minute I was ready to cry, the next I was ready to slap someone and then I'd be laughing about something. 

For. No. Reason! 

Well other than my whole world is going to change in six days. Yeah, that might have something to do with it. 

As if the roller coaster wasn't bad enough I was instructed by someone who meant well but told me to, "take a deep breath and count to 10." Really?! 

W. T. F?!?! 

This is not a patience thing. This is a massive body altering operation followed by chemo, which we all know sucks. I don't need patience I needed someone to say, "I'm so sorry. Days like this really do suck." 

Take a breath?! 

So I completely came unglued on the person. 

I then called them back to apologize and explain that in the future if you catch me in a mood like that giving me advice about calming down is the WORST thing a person could do. What I need in that moment is to be validated. 

As God is my witness, she replied with, "Well I do validate your feelings...but you do need to step back and take a breath." 

I hung up. 

I don't need advice. I didn't call for advice. I don't want advice. 

I needed a sounding board. I needed understanding. I needed someone who would take my mind off this mess and make me laugh. Change the subject. Talk about something stupid. Something menial whatever...just don't lecture. 

Yes, I am strong. Yes, I'm a fighter. Yes, I will get through this. 

Doesn't mean that I'm happy about it or that it will be a walk in the park. I do my best to stay in the here and now but sometimes what's coming pokes his head into my life to remind me that dark days are coming. 

Imagine being at the beach with a beautiful blue sky listening to the waves crash on the shore and a rain cloud suddenly comes over you and only you. Then it goes away, and comes back repeatedly. That was how I felt today. 

No amount of breathing made me feel better. And, well, I had to do it all day to stay alive. 

Having other cancer patients/survivors tell me they know how I feel made me feel better. 

Having people make me laugh makes the biggest impact! 

A friend messaged me today to see how I was and I replied, "It's an angry day. Some days are happy but today I just want to slap someone."

Later on when I left the shop to pick up the boys from school I got in my car, put the key in the ignition to start the car and found this on my windshield. 


Oh how I love my friends. 

Keep me laughing gang. 



Thursday, April 29, 2021

Patience...

...is a virtue I lack. 

Everything involved with this process involves waiting and it is beyond stressful. 

Have a test? 

Wait for the result. 

Have a question? 

Wait for the reply. 

Follow up with the doctor? 

Wait for that appointment. 

Want to schedule surgery? 

You'll have to wait a few weeks to get on the roster. 

AAAAAAAAAAAAH! 

I do have a surgery date though. 

May 17, 2021 will be the day I go in for the double mastectomy.

Yes, I have to wait another 18 days for that too! 

But...

No more bras!!!! 

I decided that I am definitely not interested in having the reconstruction done as the statistics for additional surgeries/failure are really high. Instead, I have a beloved friend who has agreed to design a chest tattoo for me. 

I am so excited and can't wait to see what she creates!!! 

In the meantime, we are still waiting for the Her2 pathology. 


What is HER2?

The human epidermal growth factor receptor 2 (HER2) gene is responsible for producing HER2 proteins. HER2 proteins are present on the surface of some breast cancer cells. When they’re activated, they signal breast cancer cells to divide and multiply. 

Normally, HER2 proteins regulate and control the growth of breast cells. But when the HER2 gene is mutated, which is the case in about 1 in every 5 cases of breast cancer, it makes too many HER2 proteins. This results in breast cells growing and dividing out of control.

So you can see why this is important pathology! 

I had a bone scan that showed a weird thing with my spine that the radiologist says is most likely degeneration but it also is in the area where I had a spinal fusion in 1990. I will have to have a CT scan to double check and rule out anything else. 

Next week I meet with a genetic counselor but I'm not entirely sure why and I will also see my surgeon again to go over the tests and discuss surgery. Hopefully, we'll have the Her2 back. 

With the surgery date set, I have begun to prep. 

My employees (greatest people on the face of the earth BTW) are  ready to jump in and do whatever is necessary. My business partner has been training extra people to cover shifts in our store and I have added a ton of people to the pick-up list at the kids’ school. 

After surgery it will be a minimum of two weeks before I can really do anything so another friend and pink ribbon sister has set up a Take Them A Meal link for people to help out. This is the link if you would like to sign up. https://takethemameal.com/FYPS6898  

Countless numbers of people have offered assistance for things from folding our laundry (you are saints) to transporting the boys to their activities. Even my hubby’s employer told him to take whatever time he needs. 

No matter what, this is a crappy situation but the outpouring of love and support has blessed us with peace of mind and we couldn’t ask for more!  

Until next time ladies...

Friday, September 4, 2015

You Called Me!

I've been bailing my mom out of her computer calamities for at least the past decade.

It could be as simple as a basic email mishap or as complicated as the time she did a mail merge from an Excel spreadsheet to a Word document and somehow managed to delete the Excel Spreadsheet. Either way, despite my having at least two nephews who are much more computer literate than I, she calls me.

Unfortunately...

I don't mind that she calls me. I mind that she argues with me when I try to help her.

I end up like a raving, stuttering Italian mother with my hands waving and spittle forming in the corners of my mouth!

It's ugly.

Years ago I purchased a MacBook Pro and was able to take a break from my roll as Emergency  Technician because she had a Windows based computer and I could get out of things by saying, "I don't know mom, I have a Mac."

Well that hiatus ended when she bought at MacBook Air and chose not to take the three free lessons at the Apple Store.

I was once again her Help Desk.

Most of the time I don't mind until she argues and then I want to rip out my hair all while desperately attempting to be calm and speak in a non-techie language so she can understand what I'm saying.

Words like dohickey, thingy and hooha are used as if those things really exist.

If the computer doesn't respond when she hits a key, she hits another, and another, and another...

You get the point.

Anyway, the computer doesn't stop taking the commands, it just gets slower which causes her to press more and more keys while I yell, "Stop TOUCHING!" into the phone and my children look at me as if I were insane.

She called me the other night while trying to print her boarding pass and luggage receipt for her flight on US Airways and couldn't get it to appear in the print preview window properly.

My mother has one of the most impressive vocabularies of any person I know or have known but her love of the English language goes out the window when frustrated.

She could make a sailor blush.

I do the usual with her and walk her through the print screen stuff but can't figure out why it's coming up funky so I tell her to take a picture of the screen and send it to me in an email so I can see it.

She does as told, for a change, and sends it to me so that I can figure it out and call her back. Right before I hang up she says, "I'm going to reboot my computer while you're looking at the picture."

Yeah, um...don't do that because it negates the point of taking the picture in the FIRST PLACE!!!!

Did I mention that she has the patience of a gnat?

I finally get her to agree to stop touching things and wait for me to call her back.

I get the picture, it's odd and I still can't figure out how the hell she got there so I call back and ask her to send me the email that she received from US Airways so that I can see it and figure out how to print it.

She does and I immediately figure out that she had been trying to print something in Gmail from the top of the screen where it says: File, Edit, View, etc. instead of using the print option IN the email as opposed to the entire page. I tell her to open the email from US Airways and she replies, "Which one?"

God grant me the Serenity...

The one you just sent me.

"Where do I find that?"

To Accept the things I cannot change...

Um...your inbox?!

"I can't see it."

O! M! G!

She finally manages to find the email and I ask her to tell me what she sees in the upper right hand corner which turns into her telling me not to yell at her. I wait what feels like and eternity until she's finished and say, "Can I speak?"

I walk her through printing the email which again turns into me yelling, "Stop, Stop, STOP!!!" When she tried to change from printing 'All' pages to 'From # to #.' 'All' is the default and was selected but because the 'From 1 To 1' was visible she thought it was only going to print one page.

Dear God in Heaven...

She finally just clicked Print and lo and behold two pages appeared like magic in the top of the printer.

Mom breathed a sigh of relief and asked, "What would I do without you?"

I don't know, I just wish you wouldn't argue when you call me for help!

Thursday, April 17, 2014

We Have A Revolt!

The boys favorite place to be is outside. They love to run around in the grass and especially love to follow daddy around the yard "helping" him with different projects.

There are times that I just can't stop what I'm doing and run around the yard with them and, with the weather the way that it's been, I also don't want to be outside!

Hubby discovered a work around for this on rainy days or days when I am too busy to be able to drop what I am doing and go outside. We open the inside door to the garage (with the big door closed) and let them come and go as they wish. They love this and it keeps them occupied for long periods of time.

We've moved all of the dangerous gardening tools to the shed and put the other harmful stuff up where they cannot reach it, etc. Can't baby-proof 100% but we've moved the obvious stuff.

I told my mom that we let them play in the garage and she immediately replied, "Well, I hope you're not letting them play with the tools!"

Really???

I'm not sure if it was because I was exhausted or just tired of these types of "well-meaning" comments, I replied in a rather sarcastic, snippy manor, "You mean I should take the hacksaw away from them? We were going to let them practice trimming the hedges by lopping off their fingers with the pinking shears. Guess we should stop them..."

Yeah...this is what I deal with.

I love my mom to pieces but her constant diatribe of ridiculous comments can really get under my skin sometimes.

I have a home-based cake business and am often up until 2am working a cakes for delivery. There are plenty of days that I am exhausted but have to be up because of the boys. When the exhaustion factor has taken over my fuse gets very short. Not so much for the babies but more so for stupidity!

On those days in particular I avoid Walmart...Just no patience for that sect of society.

The boys are usually a source of amusement for me but some days they leave me at my whit's end...this would be one of those days...

They have figured out how to open the powder room door and usually do so yelling, "BOO!" at whomever is sitting on the potty. This initial introduction is then followed by the shouting of the word pee-pee more times that you can imagine any creature uttering a word. It was cute the first couple of times, now it's just annoying.

When I am not looking they like to open the door and play with the toilet brush - yuck! or remove the toilet paper and roll it around on the floor. I get absolutely nothing accomplished because my time is spent moving them from the door to a toy hoping to divert their attention. As of right now there is a five gallon bucket of spackle topped with a three gallon bucket of ceiling paint in front of the door to keep them out of the room.

Needless to say my productivity is non-existent today.

My eyesight has gotten worse over the years which is a good thing in a sense...it's heightened my hearing which is much needed since I can't see around corners without stopping whatever I am doing...Hence the reason I work until 2am.

I have come to know the sound of certain toys, the door to their bookcase, the cabinet they play in etc. It's the silence and the odd noises that get my attention. On of the noises that I'm sure I'll never tire of is that of my husband struggling to control the boys.

We usually bathe the boys every other night, unless they are really dirty from helping daddy in the gardens. The other night after bath time and after putting them into diapers I went back into the bathroom to drain the tub and rinse the ring of boy funk down the drain. As I was finishing up I heard, "Uh, no, no, NO!!! We have a revolt, we have a revolt!!!"

When I walked into the boys' room the Engineer was standing in the middle of the floor completely naked - diaper nowhere to be found - poking himself in the penis and giggling. Meanwhile hubby has the Stuntman in his lap - sort of - desperately trying to reattach the diaper that he had removed.

The Stuntman was across one of hubby's legs and doing the 'crocodile roll' trying to prevent the re-application of the diaper. He was moving so fast that he appeared to have grown another set of arms and legs.

Hubby looked like he was trying to put a diaper on a spinning octopus.

Both were making lots of noise but neither was coherent because they were laughing so hard.

Evidently the boys had worked together to remove their diapers.

The Engineer slowly pealed the tabs back on his diaper, across the room from daddy, who could not get there in time to prevent said removal and just as the Engineer was successful hubby turned to see Stuntman remove his diaper "Chippendale" style and fling it across the room - Please God do not let this be a premonition of future employment!

This, no doubt, will not be the last time they successfully remove their diapers and fling them across the room...I just pray that the next time they will be as clean as they were this time.

Wednesday, February 19, 2014

Counting Blessings...One-handed

Yes there is such a thing as being too patient!

The other night the Engineer tripped and face planted right into the door jamb. After I got him settled down hubby was playing with him when the Engineer fell again and hit the same spot which was again followed by screaming.

Hubby is so patient, too patient in fact. He held the Engineer, whose screams continued to escalate, and just sat there on the sofa with him waiting for the 15 month old to settle down...which did not happen.

If doing the same thing over and over again and expecting a different result is really the definition of insanity, then hubby is truly nuts.

Since day one he has done virtually the same thing. While I believe that kids need to learn to soothe themselves, there are times when self-soothing is not an option and distraction is the better option.

I thought this was common sense...evidently it's rocket science.

When I tell him to move around, etc. he gets defensive like I'm picking on him. Noooo I'm here all day, I have to distract them fairly frequently and know what works because I'VE TRIED IT!!

Of course some days are better than others - which really goes without saying but, I've said it anyway.

Most days the boys are capable of playing by themselves. They will fight over toys, but usually find something else to play with once the toy has been removed. There are certain toys that we keep out of reach as they involved parental supervision and well...I don't always feel like supervising.

Since we began the liquid Zantac our nights have improved immensely. The kids sleep through the night almost all the time now...almost.

We've been battling colds lately. Large quantities of snot aside, it hasn't been bad during the day, but night time is another story all together.

At approximately 9 p.m. every evening, we settle the kids into their highchairs, dispense meds and brush their teeth. The Stuntman receives a dose of Zantac and liquid Rolaids and if needed the Engineer will receive a dose of ibuprofen. Most nights the Engineer gets jealous of the Stuntman's medicine and we have to give him a "taste" to settle him down.

Of course, he only wants this when he's not sick. When he is sick, giving him medicine is a terrible experience for all of us! It takes no less than two people to administer any drug. He fights, screams, cries and whips his head back and forth and no matter how you put it in his mouth, he spits it back out.

Honestly, I'd much rather give pills to a cat than liquid medicine to the Engineer. That being said, I do have more than 40 years experience with cats and only 15 months experience with the Engineer.

When the boys have colds they don't sleep well. Really, who does when they are sick? At least as adults we know what the problem is and how to deal with it. As babies they have no idea what is going on and can't be reasoned with. Crying makes their snot production go into overdrive and giving the Engineer a dose of anything in the middle of the night is not an option! 

Recently, the Engineer AKA The Urinator peed so much that he soaked his diaper, his pajamas and his crib and woke us, as well as the neighborhood, up with his screaming. We got him changed and because I didn't want to change the sheets in his crib at 2am put him in the big bed with us.

Unfortunately, the Stuntman doesn't sleep through the Engineer's screaming and he woke up as well. There was nothing wrong with him but he was now wide awake.

We only have a queen size bed, fitting the four of us in it is not really an option so I took the Stuntman down to the family room and snuggled on the sofa in desperation of recovering some much needed sleep.

Since the Stuntman's faulty dismount from the sofa, and subsequent stitches in the back of his head, we keep the coffee table pushed up against the front of the sofa so they can climb up and down without injury. I left the coffee table in place, grabbed a bottle of milk from the fridge and settled down on the sofa on my back with the Stuntman on my chest.

After a while, he wiggled himself between the back of the sofa and me leaving me on my side with my knees bent, which he didn't like. Eventually, he rolled over onto his stomach taking up the bulk of the sofa cushion and began kicking me to move my legs so that he could stretch out. I had no choice but to roll over onto the coffee table and try to sleep!

Needless to say it was a really bad night and when I finally did wake up my left arm was asleep and completely paralyzed.

Despite having the bed, hubby didn't really have a much better time. The Engineer does this thing with his legs when he is on his stomach where he "digs" with his feet which propels him forward. Hubby was awakened by whimpering to find the Engineer had traversed the head of the bed and propelled himself down in the chasm between the bed and the nightstand - head first!

Nights like this I try to count my blessings and think of the time with either boy as bonus snuggle time.

However, it's really hard to count blessings when the fingers of one hand are paralyzed from sleeping on the coffee table which may be very sturdy but not the least bit snugly.