God's Got This

I am blessed. Really, really blessed.  

I didn't just survive cancer, I have beaten it. 

"The biopsy was malignant." Are four words that stike fear in those of us who have received the call. 

Given my family's pathology, the call was no surprise but it was no less terrifying. In fact, my oncologist says that my family history makes her toes curl. 

Overnight I went from only knowing the difference between benign and malignant to a functional knowledge of ductal, invasive ductal and lobular cancers. 

The learning curve was severe but necessary. 

Knowledge really is key in the fight against cancer. 

I am not one to take things strictly at face value. I do my research, speak to others who have walked the path and find as much information as I can process. I prefer information and facts vs how I might feel about something. 

Probably why I despise the "talking heads" on TV. They play on emotion a little too much for me! 

Anyway...

The beast is beaten into remission. 

I have won!

However...

Far, far in the recesses of my brain there is a small molecule of doubt, worry, anxiety. 

All the "what if" questions live there. 

This is where my faith fights my battles. 

I can't quote scripture. I have a horrible memory for scripture, song lyrics or most other quotes...but I'm really good with jokes! 

And, I have faith. 

It's so hard to put into words. 

Dictionary.com defines Faith as: "complete trust or confidence in someone or something."

That someone or something is God.  

"God's got this" is what plays through my head and heart the most. 

According to the American Cancer Society, 1 in 8 women will develop breast cancer and of those 1 in 39 will die. While deaths from breast cancer have decreased by 43% it's still going to take more than 43,000 women in the US each year. 

I don't know why I was spared but I have faith that God's got this. 

However, I still ask, "Why?"

Why was I chosen to live? Why me? 

I don't know if I am currently living God's plan or if I will be called into service in the future. Was my purpose to bring humor into the chemo center? Is it so that I can share my experience? 

I don't know. 

Many will say that it doesn't matter and that what matters is that I did beat it and can continue living but I believe that it's bigger than "just living." 

Millions of people will be diagnosed and many won't survive. 

In fact, last week I attended a celebration of life party with a man who was losing his battle with pancreatice cancer. I am so grateful for the opportunity to see him again and hug him one final time. 

But, while talking he looked at me and asked, "How long has it been for you?" 

I didn't realize what he was asking so I replied, "For what?"

He said, "Since you were diagnosed." 

I felt like I'd been hit in the face with a 2x4. 

I have never felt more horrible or more guilty than that very moment. 

There I was standing in front of a man whose life was most likely down to hours explaining that it's been two years since I was diagnosed. 

I wanted to crawl under a rock. 

Survivor guilt is real!

I'm still reeling from it and find myself asking again, "Why was I chosen to live? Why me?" 

Gary passed barely 24 hours after that party. I am grateful that he chose to spend time with the ones he loved and to see everyone one more time. His bravery in allowing people to see him during his last days was amazing. 

His impact will be felt for years as will his loss. 

I pray that my impact on those around me has been and will continue to be positive. 

I may never know why I was spared but I will continue to do my best to continue to share the knowledge I have gained in this process and trust that God's got this. 

Robotic Box Checker

I thought I was going to get my drains out last week.

I was wrong. 

Unbeknownst to me, the total drainage per side needs to be below 30 cc per day for two days consecutively. Not knowing this, I arrived at the surgeon's office only to be informed, rather snippily by the nurse, that I was not going to be having them removed that day, the next day or probably not until the following week.

When I questioned why she said that I was draining more than 30cc's for the day. When I replied that I didn't know that she said, "I asked you when you called this morning." 

Technically she did. However, she did not ask, "Are you under 30cc's for the day?" What she asked was, "Are you under 30cc's?" I replied that when I emptied the drain that morning it was less than 20cc's. 

She got nippy. I got snippy right back and said, "You'll have to excuse me. This is the first time I've had my boobs cut off so I have no idea how things are supposed to work."

Then I had a massive meltdown... and the nurse got a lot nicer.

But, I still spent the day in bed crying. I was devastated. 

The drains hurt. 

I mentioned previously that the drain on the right was killing me. It was super painful and as it healed it got worse. Add suction pain to the drain pain and I was completely miserable. Seriously, it felt like my skin was being sucked into my chest. 

Sleeping has been nearly impossible which has contributed to my deteriorating emotional state and increased depression. Two antidepressants a day did little to help me. 

Don't get me wrong, I could and did, push through most days but all it would take was a pin to drop and I was off and blubbering again. 

I'm not the worst at asking for help but I'm not the best either. 

Fortunately for us, people have been better at helping than I have been at asking. 

Dinner has been delivered every other night by an army of friends and neighbors. The kids have had transportation provided and extra play time at friend's houses so I could rest and my staff has been UNBELIEVABLE! 

Honestly, I couldn't ask for better employees! I want to go into detail about these women but I will save that for another day and give them the full post they deserve. 

Fast forward to this week and my drains were removed on Wednesday...finally. 

We arrived at the surgeon's office and checked in. 

The nurse (same one) came around the corner and told Glenn that he couldn't come in. I responded with another  massive meltdown...like snot bubble, hyperventilate meltdown. 

Persistent pain is exhausting. I was worn out and clearly incapable of controlling my emotions.

Fortunately she relented, let him come with me and my drains were removed. 

The left one was uncomfortable but the right (the one that's hurt the whole time) hurt like hell! The nurse had to stop halfway through removing it so I could take a break. 

She also removed the steri-strips from the surgery and it looks so good! The incision is still a little wrinkly but it's flattening out a little each day. 

I did apologize for being such a nut job in the waiting room. She told me it was ok and went on to explain that since she was in the room alone she was afraid of having my husband pass out (something that has happened with spouses before) and she would not be able to take care of him and pull the drains at the same time. 

She told me I didn't need to apologize but I did again anyway. I do feel badly. 

Without the drains in, both my demeaner and my range of motion are improving. I'm not crying at everything and I even helped on some of the cakes this week! 

Maybe I'll even be able to fold the massive pile of clean laundry that has accumulated in the house. 

Yippee. <snark>

Glenn washes and dries but doesn't fold. 

After lunch we met with my oncologist, Dr. Tedeschi at Penn Medicine. 

Before the doctor came in a technician came to take my weight, temp, oxygen level etc. then began asking the barrage of general questions. The best one was, "Are you experiencing pain?" Glenn snorted, I laughed and said, "I just had my drains removed, so today is probably not the day to ask." She looked at me like a deer in headlights and asked, "So you have pain?" I replied, "Yeah, yeah I have pain." 

Then she asked...

Wait for it...

...

"Where?"

"Where they cut my boobs off!" I snarked. 

Really?!

C'mon people! I understand that these are trained individuals but seriously, can we bring back common sense?! They are not just trained but over-trained an incapable or not allowed to think for themselves. 

It was like speaking with a robotic box-checker. 

The Oncologist was a different story! I really like her. She is smart, funny, compassionate and has common sense! 

She didn't brush my concerns aside about having two businesses and needing to be as available as possible. When discussing the chemo schedule and possible side effects she made the suggestion of Fridays for infusion. This way if I have a negative reaction to the chemo my down days would be Sunday and Monday when the store is closed anyway and I wouldn't have to worry about finding someone to cover my hours. If it goes well and I feel up to it, I can have the infusion in the morning and then work in the afternoon! 

If I don't have any reaction to the chemo, I can switch my infusion days to Tuesdays in Kennett Square vs Friday's in West Chester. The difference in drive time is about 25 minutes each direction so being able to move to Kennett Square would be fantastic! 

Dr. Tedeschi did say that I would probably lose my hair. I replied, "Well, a summer without shaving can't be all bad right?!" She looked me in the eyes, smiled and said, "I like you. We're going to get along really well." 

I know for some losing their hair can be very traumatic. Truth be told? I'm sort of looking forward to not having hair. I've had a life-long love/hate relationship with the stuff. It is extremely frizzy. I once even had a hairdresser refer to it as fuzzy! Not having to deal with it at all might be a welcomed change for a few months. 

Now onto the chemo regimen....

I will be having Taxol + Herceptin infused via a port once a week for 12 weeks and then just the Herceptin once every three weeks for the remainder of the year. 

Many people are familiar with the chemo cocktail of ACTH. This stands for chemotherapy medicines Adriamycin, Cytoxan (chemical name: cyclophosphamide), and Taxotere (chemical name: docetaxel), plus Herceptin.

ACT is much more harsh than just the Taxol and comes with so many more side effects. I am feeling very lucky. Studies have shown that, in patients with clear nodes and a mass less than 2 cm, there is no benefit in receiving the ACT with H and that Taxol plus Herceptin is just as effective. Had the mass been larger or the nodes hadn't been clear my treatment would be the ACTH. 

Chemo will start on June 25. 

When we walked through the door after the appointments on Wednesday the boys greated us with, "Did they take them out?" I pulled my shirt up to show them that the tubes were indeed gone. They both cheered enthusiastically and for the first time in almost two weeks I got to fully hug my kids. 

Something I hope to be doing for many, many, many years to come.